PM&R
Volume 2, Issue 3 , Pages S12-S18 , March 2010

Pediatric Rehabilitation: 2. Environmental Factors Affecting Participation

  • Nancy Murphy, MD

      Affiliations

    • Division of General Pediatrics, University of Utah, PO Box 581289, Salt Lake City, UT 84158
    • Corresponding Author InformationAddress correspondence to: N.M.
  • ,
  • Melissa Trovato, MD

      Affiliations

    • Department of PM&R, Johns Hopkins University, School of Medicine, Baltimore, MD
  • ,
  • Heakyung Kim, MD

      Affiliations

    • Department of PM&R and Pediatrics, University of Pennsylvania, School of Medicine; The Children's Hospital of Philadelphia, Philadelphia, PA§
  • ,
  • Chong Tae Kim, MD, PhD

      Affiliations

    • Department of PM&R and Pediatrics, University of Pennsylvania; The Children's Hospital of Philadelphia, Philadelphia, PA
  • ,
  • Elizabeth Moberg-Wolff, MD

      Affiliations

    • Department of PM&R, Medical College of Wisconsin; Children's Hospital of Wisconsin, Milwaukee, WI

Received 8 December 2009 ,Accepted 9 December 2009.

References 

  1. Findley TW, Agre JC, Habeck RV, et al. Ambulation in the adolescent with myelomeningocele (I: Early childhood predictors). Arch Phys Med Rehabil. 1987;68:518–522
  2. Dopler Nelson M, Widman L, Abresch R, et al. Metabolic syndrome in adolescents with spinal cord dysfunction. J Spinal Cord Med. 2007;30(Suppl 1):S127–S139
  3. Centers for Disease Control and Prevention. Physical activity among adults with a disability–United States, 2005. Morb Mortal Wkly Rep. 2007;56:1021–1024
  4. Mita K, Akataki K, Itoh K, et al. Assessment of obesity of children with spina bifida. Dev Med Child Neuro. 1993;35:305–311
  5. Van den Berg-Emons HJ, Busman JB, et al. Body fat, fitness and level of everyday physical activity in adolescents and young adults with meningomyelocele. J Rehabil Med. 2003;35:271–275
  6. Van den Berg-Emons H, Bussmann JB, Brobbel A, Roebroeck M, van Meeteren J, Stam H. Everyday physical activity in adolescents and young adults with meningomyelocele as measured with a novel activity monitor. J Pediatr. 2001;139:880–886
  7. Widman LM, Abresch RT, Styne DM, McDoanld CM. Aerobic fitness and upper extremity strength in patients aged 11-21 years with spinal cord dysfunction as compared to ideal and overweight controls. J Spinal Cord Med. 2007;30(Suppl 1):S88–S96
  8. Buffart LM, Roebroeck ME, Rol M, et al. Triad of physical activity, aerobic fitness and obesity in adolescents and young adults with myelomeningocele. J Rehabil Med. 2008;40:70–75
  9. Bruinings AL, van den Berg-Emons HJ, Buffart LM, van der Heijden-Maessen HC, Roebroeck ME, Stam HJ. Energy cost and physical strain of daily activities in adolescents and young adults with myelomeningocele. Dev Med Child Neurol. 2007;49:672–677
  10. Verhoef M, Barf HA, Post MW, et al. Functional independence among young adults with spina bifida in relation to hydrocephalus and level of lesion. Dev Med Child Neurol. 2006;4:114–119
  11. Abresch RT, McDonald DA, Widman LM, et al. Impact of spinal cord dysfunction and obesity on the health related quality of life of children and adolescents. J Spinal Cord Med. 2007;30(Suppl 1):S112–S118
  12. Stien S, Kirschblum S, Groah S, et al. Spinal Cord injury medicine: optimal participation in life after spinal cord injury: physical, psychosocial, and economic reintegration into the environment. Arch Phys Med Rehabil. 2002;83:S72–S79
  13. Berryman S, James A, Trader B. The benefits of therapeutic recreation in physical medicine. In:  Coyle CP,  Kinney WB,  Riley B,  Shank JW editor. Benefits of Therapeutic Recreation–A Consensus View, NIDRR, Temple University Grant. Idyll Arbor Dublic; 1991;
  14. Donaldson SJ, Ronan KR. The effects of sports participation on young adolescents' emotional well-being. Adolescence. 2006;41:369–389
  15. Moberg-Wolff EA, Kiesling S. Adapted recreational and sports programs for children with disabilities: then and now. J Pediatr Rehab Med. 2008;1:155–161
  16. Murphy N, Carbone P. American Academy of Pediatrics Council on Children with Disabilities. Pediatrics. 2008;121:1057–1061
  17. Kolaski K. Myelomeningocele. Physical Medicine and Rehabilitation textbook .eMedicine (serial on line) 2006. April www.emedicine.com/pmr/topic83.htmAccessed September 28, 2008
  18. Iddon J, Morgan D, Loveday C, Sahakian BJ, Pickard JD. Neuropsychological profile of young adults with spina bifida with or without hydrocephalus. J Neurol Neurosurg Psychiatry. 2004;75:1112–1118

  19. Tarazi RA, Zabel A, Mahone M. Age related differences in executive function among children with spina bifida/hydrocephalus based on parent behavior ratings. Clin Neuropsychol. 2008;22:585–602
  20. Burmeister R, Hannay JF, Copelan K, Fletcher JM, Boudousquie A, Dennis M. Attention problems and executive functions in children with spina bifida and hydrocephalus. Child Neuropsychol. 2005;11:265–283
  21. Fletcher JM, Barnes M, Dennis M. Language development in children with spina bifida. Semin Pediatr Neurol. 2002;9:201–208
  22. Heffelfinger AK, Koop J, Fastenau P, Brei J, Coant L, et al. The relationship of neuropsychological functioning to adaptation out comes in adolescents with spina bifida. J Int Neuropsychol Soc. 2008;14:793–804
  23. Clancy CA, McGrath PJ, Oddson BE. Pain in children and adolescents with spina bifida. Dev Med Child Neurol. 2005;47:27–34
  24. Oddson B, Clancy C, McGrath P. The role of pain in reduced quality of life and depressive symptomology in children with spina bifida. Clin J Pain. 2006;22:784–789
  25. Dosa N, Eckrich M, Katz D, Turk M, Liptak G. Spina bifida; incidence, prevalence, and characteristics of fractures in children, adolescents and adults with spina bifida. J Spinal Cord Med. 2007;30(Suppl 1):S5–S9

  26. www.ADA.gov/t3hilght.htmAccessed March 8, 2010
  27. Universal Design Website. www.design.ncsu.edu/cudAccessed March 1, 2009
  28. Ante BJ, Mills W, Steele C, Kalnins I, Rossen B. An exploratory study of parents' approaches to health promotion in families of adolescents with physical disabilities. Child Care Health Dev. 2008;34:185–193
  29. Office of Communications and Public Liaison, National Institute of Neurological Disorders and Stroke, National Institutes of Health. NINDS Congenital Myopathy Information Page. http://www.ninds.nih.gov/disorders/myopathy_congenital/myopathy_congenital.htmAccessed October 27, 2008
  30. Council on Children with Disabilities. Provision of educationally related services for children and adolescents with chronic diseases and disabling conditions. Pediatrics. 2007;119:1218–1223

  31. Michaud LJ. Prescribing therapy services for children with motor disabilities. Pediatrics. 2004;113:1836–1838

  32. Office of Communications and Public Liaison, National Institute of Neurological Disorders and Stroke, National Institutes of Health. NINDS Leukodystrophy Information Page. http://www.ninds.nih.gov/disorders/leukodystrophy/leukodystrophy.htmAccessed October 28, 2008
  33. Schneidert M, Hurst R, Miller J, Ustun B. The role of environment in the International Classification of Functioning, Disability and Health (ICF). Disabil Rehabil. 2003;25:588–595

  34. Murphy NA, Carbone PS Council on Children with Disabilities. Promoting the participation of children with disabilities in sports, recreation, and physical activities. Pediatrics. 2008;121:1057–1061

  35. Murphy N, Christian B. Disability in children and young adults: the unintended consequences. Arch Pediatr Adolesc Med. 2007;161:930–932
  36. American Academy of Pediatrics. What is a medial home?. http://www.medicalhomeinfo.org/index.htmlOctober 20, 2008;Accessed December 4, 2008
  37. Council on Children with Disabilities. Care coordination in the medical home: integrating health and related systems of care for children with special health care needs. Pediatrics. 2005;116:1238–1244

  38. Gordon JB, Colby HH, Bartelt T, Jablonski D, Krauthoefer ML, Havens P. A tertiary care-primary care partnership model for medically complex and fragile children and youth with special health care needs. Arch Pediatr Adolesc Med. 2007;161:937–944
  39. Neville B. Tertiary paediatrics needs a disability model. Arch Dis Child. 2000;83:35–38
  40. American Academy of Pediatrics. Guidelines for Pediatric Home Health Care. In: 2nd ed.. Elk Grove Village, IL: American Academy of Pediatrics; 2008;
  41. Augutis M, Levi R, Asplund K, Berg-Kelly K. Psychosocial aspects of traumatic spinal cord injury with onset during adolescence: A qualitative study. J Spinal Cord Med. 2007;30:S55–S64
  42. Ringeisen H, Casaneueva C, Urato M, Cross T. Special health care needs among children in the child welfare system. Pediatrics. 2008;122:e232–e241
  43. Pasztor E, Hollinger D, Inkelas M, Halfon N. Health and mental health services for children in foster care: The central role of foster parents. Child Welfare. 2006;85:33–57
  44. Steward D, Law M, Burke-Gaffney J, et al. Keeping it together: An information KIT for parents of children and youth with special needs. Child Care Health Dev. 2006;32:493–500
  45. Cuddeback G, Orme J. Training and services for kinship and non-kinship foster families. Child Welfare. 2002;81:878–909
  46. Romney SC, Litrownik AJ, Newton RR, Lau A. The relationship between child disability and living arrangement in child welfare. Child Welfare. 2006;85:965–984
  47. A Project of Children's Rights and United Cerebral Palsy. Forgotten Children: A Case for Action for Children and Youth with Disabilities in Foster Care. www.childrensrights.org/pdfs/forgotten2.pdf2006;Accessed January 1, 2009
  48. American Academy of Pediatrics. Committee on Early Childhood, Adoption and Dependent Care. Health Care of Young children in Foster Care Pediatrics. 2002;109:535–541
  49. In:  Betz R,  Mulcahey M editor. The Child with Spinal Cord Injury. Rosemont, IL: American Academy of Orthopaedic Surgeons; 1996;
  50. Rhodes K, Orme J, Cox M, Buehler C. Foster family resources, psychosocial functioning and retention. Soc Work Res. 2004;27:135–150
  51. Ashetekar CS, Hande A, Stallard E, Tuthill D. How much do junior staff know about common legal situations in pediatrics?. Child Care Health Dev. 2007;33:631–634
  52. Raghaven R, Peichan S, Aarons G, Roesch S, McMillen JC. Health insurance discontinuities among adolescents leaving foster care. J Adol Health. 2009;44:41–47
  53. Leslie L, Kelleher K, Burns B, Landsverk J, Rolls J. Foster care and Medicaid managed care. Child Welfare. 2003;82:367–392
  54. American Academy of Pediatrics - Care Notebook Information. http://www.medicalhomeinfo.org/Tools/care_notebook.htmlAccessed March 1, 2009
  55. Jee SH, Simms M. Health and well-being of children in foster care placement. Pediatr Rev. 2006;27:34–36
  56. King G, Meyer K. Service integration and coordination: A framework of approaches for the delivery of coordinated care to children with disabilities and their families. Child Care Health Development. 2006;32:477–492

 Disclosure Key can be found on the Table of Contents and at www.pmrjournal.org

PII: S1934-1482(09)01640-2

doi: 10.1016/j.pmrj.2009.12.002

PM&R
Volume 2, Issue 3 , Pages S12-S18 , March 2010