PM&R
Volume 1, Issue 4 , Pages 371-378 , April 2009

The Curious Case of Ashley X

  • Kristi L. Kirschner, MD (Feature Editor)

      Affiliations

    • The Rehabilitation Institute of Chicago, Chicago, IL⁎
    • Corresponding Author InformationAddress correspondence to: K.L.K.
    • ,
  • Doug Diekema, MD, MPH (Guest Discussant)

      Affiliations

    • University of Washington School of Medicine, Treuman Katz Center for Pediatric Bioethics, Seattle Children's Hospital, Seattle, WA†
    • ,
  • John Lantos, MD (Guest Discussant)

      Affiliations

    • MacLean Center for Clinical Medical Ethics at the University of Chicago, Chicago, IL‡
    • ,
  • John D. Kemp (Guest Discussant)

      Affiliations

    • Powers Pyles Sutter & Verville, P.C., Washington, DC§
    • ,
  • Elisabeth Doyle (Guest Discussant)

      Affiliations

    • Powers Pyles Sutter & Verville, P.C., Washington, DC
    • ,
  • Debjani Mukherjee, PhD (Guest Discussant)

      Affiliations

    • Northwestern University Feinberg School of Medicine, Rehabilitation Institute of Chicago, Chicago, IL∥
    • ,
  • Walton O. Schalick III, MD, PhD (Guest Discussant)

      Affiliations

    • University of Wisconsin-Madison, Madison, WI#

References 

    Kristi L. Kirschner, MD
  1. Gunther DF, Diekema DS. The use of high-dose estrogen to attenuate growth in severely developmentally disabled children: Medical and ethical considerations. Arch Pediatr Adolesc Med. 2006;160:1013–1017
  2. “Ashley Treatment”: Toward a better quality of life for “Pillow Angels.”. http://ashleytreatment.spaces.live.comAccessed February 5, 2009
  3. Carlson DR, Dorfman DA. Investigative Report Regarding the “Ashley Treatment.”. Washington Protection and Advocacy System. Issued May 8, 2007 http://www.disabilityrightswa.org/news-1/Investigative%20Report%20Regarding%20the%20Ashley%20Treatment.pdfAccessed February 13, 2009
    Doug Diekema, MD, MPH
  1. Gunther DF, Diekema DS. The use of high-dose estrogen to attenuate growth in severely developmentally disabled children: Medical and ethical considerations. Arch Pediatr Adolesc Med. 2006;160:1013–1017
    John Lantos, MD
  1. Carel JC, Lahlou N, Roger M, Chaussain JL. Precocious puberty and statural growth. Hum Reprod Update. 2004;10:135–147
  2. Albanase A, Hopper NW. Suppression of menstruation in adolescents with severe learning disabilities. Arch Dis Chil. 2007;92:629–632
    Debjani Mukherjee, PhD
  1. Indian Institute of Cerebral Palsy. http://www.iicpindia.com/aboutus.htmlAccessed February 11, 2009
  2. Gunther DF, Diekema DS. The use of high-dose estrogen to attenuate growth in severely developmentally disabled children: Medical and ethical considerations. Arch Pediatr Adolesc Med. 2006;160:1013–1017
  3. Ashley's Blog. http://ashleytreatment.spaces.live.com/blog/Accessed February 9, 2009
  4. Ashley's Blog. Update: December 31st, 2007 http://ashleytreatment.spaces.live.com/mmm2009-01-21_18.21/mmm2007-10-25_18.59/blog/cns!E25811FD0AF7C45C!1827.entryAccessed February 9, 2009
  5. Kirschner KL, Brashler R, Savage TA. Ashley X. Am J Phys Med Rehabil. 2007;86:1023–1029
  6. Mukherjee D. Privacy and Intrusion in Ethnographic Health Research. In:  Jegatheesan B editors. Access, A Zone of Comprehension and Intrusion (Advances in Program Evaluation). Vol 12:Bingley, UK: Emerald Group Publishing Limited; 2008;p. 83–96
    Walton O. Schalick, III, MD, PhD
  1. In:  Parens E editors. Surgically Shaping Children: Technology, Ethics, and the Pursuit of Normality. Baltimore: Johns Hopkins; 2006;
  2. Nussbaum MC. Frontiers of Justice: Disability, Nationality, Species Membership. Cambridge: Belknap; 2006;
  3. Plauché Johnson C, Kastner TA Committee on Children With Disabilities. Helping families raise children with special health care needs at home. Pediatrics. 2005;115:507–511
  4. Brosco JP, Feudtner C. Growth attenuation: A diminutive solution to a daunting problem. Arch Pediatr Adolesc Med. 2006;160:1077–1078

 Disclosure Key can be found on the Table of Contents and at www.pmrjournal.org

PII: S1934-1482(09)00341-4

doi: 10.1016/j.pmrj.2009.03.006

PM&R
Volume 1, Issue 4 , Pages 371-378 , April 2009

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